Care Hub

Connecting Patients with Care Providers in the Community

http://www.carehub.info


Care Provider Details

Company Name :
Huntington's Disease Association
Telephone :
0151 331 5444

Contact Details and Information

Email :
debra.robinson@hda.org.uk
Website : (The link to the Provider's website will open in a new Tab.)
https://www.hda.org.uk
Introductory Statement :
The Huntington's Disease Association is a registered charity (no 296453) and a company limited by guarantee (no 2021975).

The Huntington’s Disease Association is the national charity supporting people affected by Huntington’s disease across England and Wales. We provide a national support network for families and professionals, specialist publications, training and social research funding, raise awareness and campaign to help us achieve our vision of a better life for anyone affected by Huntington’s.

We offer advice, guidance and Signposting service, around all aspects of Health, welfare, education and finance relating to Huntington's Disease.
Details about the Care Provider :
Specialist Huntington’s Disease Advisers can help by:

Occasional home visits or Patient surgery days to provide practical help and emotional support
Confidential telephone helpline service
Coordinating support with medical, health and social care professionals
making referrals into specialist Huntington’s disease clinics
Advocating for the person with Huntington’s disease to get the best support
Educating medical, health and social care professionals, meaning better diagnosis and ongoing care
Organising and attending local support networks and carers’ group meetings
provide a listening ear
Providing information resources on symptoms and how to manage them
connecting younger family members with our Youth Engagement Service
giving support for sensitive end-of-life care

Services Offered

Category Sub-Category Title
1. Babies & ToddlersCare, Carers and RespiteCarers groups
2. ChildrenCare, Carers and RespiteCarers groups
3. Students/Young AdultsCare, Carers and RespiteCarers groups
4. AdultCare, Carers and RespiteCarers groups
5. SeniorsCare, Carers and RespiteCarers groups
1. Babies & ToddlersInformation and other support servicesGeneral information services
2. ChildrenInformation and other support servicesGeneral information services
3. Students/Young AdultsInformation and other support servicesGeneral information services
4. AdultInformation and other support servicesGeneral information services
5. SeniorsInformation and other support servicesGeneral information services
1. Babies & ToddlersLong Term ConditionsNeurological conditions
2. ChildrenLong Term ConditionsNeurological conditions
3. Students/Young AdultsLong Term ConditionsNeurological conditions
4. AdultLong Term ConditionsNeurological conditions
5. SeniorsLong Term ConditionsNeurological conditions
1. Babies & ToddlersLong Term ConditionsOther long term conditions: support and services
2. ChildrenLong Term ConditionsOther long term conditions: support and services
3. Students/Young AdultsLong Term ConditionsOther long term conditions: support and services
4. AdultLong Term ConditionsOther long term conditions: support and services
5. SeniorsLong Term ConditionsOther long term conditions: support and services
1. Babies & ToddlersInformation and other support servicesOther Support / Counselling services
2. ChildrenInformation and other support servicesOther Support / Counselling services
3. Students/Young AdultsInformation and other support servicesOther Support / Counselling services
4. AdultInformation and other support servicesOther Support / Counselling services
5. SeniorsInformation and other support servicesOther Support / Counselling services